Wall of Hope, IH Awareness Month, September 2011
IHRF Relaunches the Wall of Hope on Facebook For IH Awareness Month 2011
Intracranial hypertension (IH) is an invisible disorder; people with IH often look fine, on the outside, but are, in fact, suffering terribly. It also is an illness that can strike anyone. The Foundation originally created the Wall of Hope on IHRF’s Facebook page as part of the effort to raise public awareness of intracranial hypertension for Rare Disease Day. It proved so popular that we are is once again opening the Wall of Hope for your pictures during IH Awareness Month (September 2011). Please join this grass-roots campaign to literally give IH a face—yours!
Are you on Facebook?
For the month of September, we are asking you to take a picture of yourself and add these additional words:
I am the face of intracranial hypertension (IH).
IH Awareness Month, September 2011
http://www.ihrfoundation.org
If you are a friend or family member of someone with IH, you can use the following:
My (family member/friend) has intracranial hypertension (IH).
IH Awareness Month, September 2011
http://www.ihrfoundation.org
After you take the picture, please send your photo by Facebook message or to .(JavaScript must be enabled to view this email address) to volunteer Dori Harrison Clements. Dori and volunteer Brooke Pettigrew will be posting the photos to our page, so we can create a Wall of Hope album. We also hope that you will use it for your profile photo during September as way to continue to spread awareness.
Thanks for your help in raising awareness of IH and IH Awareness Month!
Please note: IHRF reserves the right to select or reject any picture submitted to the Wall of Hope. To be considered for the Wall of Hope, pictures must include the following information: “I am the face of intracranial hypertension. IH Awareness Month, September 2011. http://www.ihrfoundation.org” Pictures with any other information will not be accepted. When you submit a picture to the Wall of Hope, you grant IHRF permission to use your Wall of Hope photo in any Foundation-related marketing, educational or fundraising campaign or material.