Patient Survey: IH Registry Enrollment and Follow-up Process
Patient Survey: IH Registry Seeks Your Help To Improve Registry Enrollment Process
If you are currently enrolled in IH Registry or have requested an enrollment packet from the Registry in the past, we want to hear from you! We strive to make the enrollment and follow-up process as easy as possible while collecting enough important information for researchers.
Thanks to your participation, the IH Registry remains the largest compilation of medical data on chronic IH patients in the world, and has grown to include a neuro-imaging library and the first brain tissue donation program for chronic IH. But we need your help to improve the enrollment and annual follow-up process. So, please take a moment and let us know what you think by completing the short survey below. Thanks!