Resources
Disclaimer: The following resources are provided for informational purposes only. While the Foundation has identified these links to other web sites and medical publications as a service, the Intracranial Hypertension Research Foundation (IHRF) is not responsible for the content or any information obtained through these off-site links and publications. Medical and legal information found on the Internet should not be a substitute for the advice of your physician or your legal advisor.
General Information
American Academy of Neurology (AAN)
http://www.aan.com
The website of the American Academy of Neurology.
American Academy of Ophthalmology (AAO)
http://www.aao.org/aao/find_eyemd.cfm
Offers search for board-certified ophthalmologists in the U.S. and abroad.
American Association of Neurological Surgeons (AANS)
http://www.neurosurgerytoday.org/findaneuro
Offers search for board-certified neurosurgeons in the U.S. and abroad.
American College of Radiology (ACR) /Radiological Society of North America (RSNA)
RadiologyInfo.org
http://www.radiologyinfo.org/index.cfm?bhcp=1
Offers information and tips on diagnostic imaging procedures including angiography, computer tomography (CT scans), magnetic resonance imaging (MRI), x-ray and ultrasound. Also provides database of ACR-accredited medical imaging providers.
American Medical Association (AMA)
http://webapps.ama-assn.org/doctorfinder/html/patient.html
Offers search for licensed physicians in the U.S.
American Society for Bariatric Surgery (ASBS)
http://www.asbs.org/
Offers search for board-certified bariatric surgeons in the U.S.
Center for Disease Control and Prevention: Blood Clotting Disorders
http://www.cdc.gov/ncbddd/hbd/clotting.htm
Information on thrombophilia and hereditary blood clotting disorders, including medical articles.
Cerebrospinal Fluid Research homepage
http://www.cerebrospinalfluidresearch.com
Open-access medical journal focusing on current cerebrospinal fluid research.
MedlinePlus
http://www.nlm.nih.gov/medlineplus/
MedlinePlus offers information on specific conditions, current news and other resources.
Medline Plus: Weight Control
http://www.nlm.nih.gov/medlineplus/weightcontrol.html
Weight control resources from the National Institutes of Health.
National Institute of Neurological Disorders and Stroke (NINDS)
http://www.ninds.nih.gov
Information and current news about neurological diseases.
National Organization for Rare Diseases (NORD)
http://www.rarediseases.org
Fact pages on specific rare diseases, as well as information on patient assistance programs.
Neurology homepage
http://neurology.org/
Offers a keyword search of articles from the journal Neurology, with full-text links and a “Patient Pages” section.
North American Neuro-Ophthalmology Society (NANOS)
http://www.nanosweb.org/patient_info/finda/index.asp
Offers search for board-certified neurologists and ophthalmologists with a sub-specialty in neuro-ophthalmology in the U.S. and abroad.
Pubmed
http://www.ncbi.nlm.nih.gov/sites/entrez?db=PubMed
The Pubmed database allows searches of medical literature citations and abstracts from medical journals.
The University of Michigan Medical School Anatomy Atlas
http://anatomy.med.umich.edu/atlas/atlas_index.html.
Actual anatomical pictures of the brain, ventricular system, blood supply, spine and eye.
Caregiving
American with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm
Information on and assistance with the Americans with Disabilities Act.
Centers for Medicare and Medicaid Services
http://www.medicare.gov/publications/home.asp
1-800-633-4227
Offers keyword-search for free publications like, “Medicare Basics: A Guide for Caregivers” that addresses Medicare coverage for home health and prescription drugs.
Family Medical Leave Act
http://www.dol.gov/esa/whd/fmla
1-866-487-9243
Information on the Family Medical Leave Act, which requires employers with 50 or more employees to offer up to 12-weeks of unpaid leave to eligible employees in order to care for a seriously ill family member (spouse, child or parent).
National Alliance For Caregiving
http://www.caregiving.org
Organization with links to other caregiver organizations and resources for caregivers and professionals.
Strength for Caring
http://www.strengthforcaring.com
Information, support and message boards for caregivers. Includes articles on a variety of topics such as coping and family issues.
Finding General Help in Your Community
211.org
http://211.org/
A national non-profit organization that runs a helpline (2-1-1), which connects you to organizations and agencies within your local community. 211.org chapters are located in most but not all 50 states, Puerto Rico and Canada. In Canada, please contact http://www.211canada.ca/
Medical Care
If you are uninsured and need assistance with medical bills, contact your local Social Security Office at 1-800-772-1213 to determine if you qualify for Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI). While Social Security Disability is determined by prior work experience, SSI is based on financial need.
Hill-Burton Facilities
http://www.hrsa.gov/hillburton/hillburtonfacilities.htm
1-800-638-0742
The U.S. government provides low-cost or no-cost medical care to those who qualify through Hill-Burton facilities. You can receive a list of hospitals and clinics participating in this program by contacting Hill-Burton directly.
The U.S. Department of Health and Human Services’ Bureau of Primary Health Care
http://ask.hrsa.gov/pc/
1-888-275-4772
Information on healthcare and public programs for the uninsured, including a search for local health centers and clinics.
Prescription Assistance
The Pharmaceutical Manufacturers’ Association
http://www.phrma.org
1-800-762-4636
Most major pharmaceutical companies have patient assistance programs offering a free or low-cost medication to those who can’t afford their prescriptions. This site includes a database of medication and manufacturers offering patient assistance.
The Partnership for Prescription Assistance
http://www.pparx.org
1-888-477-2669
The PPA provides a single point of access to more than 475 public and private patient assistance programs that could offer help on more than 2,500 prescription medicines, including a wide range of generics.
The Medicare Rights Center
http://www.medicarerights.org
1-212-869-3850
Another source for locating prescription assistance or discount programs.
NeedyMeds
http://www.needymeds.com/
Offers information on state-based prescription assistance programs and government-funded programs.
Together Rx Access Program
http://www.TogetherRxAccess.com
1-800-444-4106
Offers a free prescription-savings card for residents of the United States and Puerto Rico who have no prescription drug coverage and are not eligible for Medicare. Cardholders may save as much as 40% on brand-name prescription medicines, though restrictions apply. Some generic medications may also be included in the card program.