IHRF, IH Registry Seek Participants for Diamox and Pregnancy Study
September 30, 2007—Diamox (acetazolamide) is officially designated as a Class-C drug, which means that its safety for use during pregnancy has not been established. Physicians are often reluctant to use Diamox before the 20th week because of this designation and a general lack of data on the subject. But there are few treatment alternatives since surgery with general anesthesia poses a high risk to the fetus and serial spinal taps only provide temporary relief.
IHRF and the IH Registry are seeking participants for a potential study to evaluate the safety of Diamox use during pregnancy. We are seeking women with chronic IH (either idiopathic or secondary IH) who have been pregnant at or since the time of their IH diagnosis. We are interested in both those who have and those who have not taken Diamox during pregnancy. If you meet this criteria, please take a moment to answer five short questions on our survey. Your participation could impact the way doctors treat IH during pregnancy. Thank you!