Welcome
Intracranial hypertension (IH) is the general term for the neurological disorders in which cerebrospinal fluid (CSF) pressure within the skull is too high. (Old names for IH include Benign Intracranial Hypertension and Pseudotumor Cerebri).
The Intracranial Hypertension Research Foundation is the only non-profit organization in the world devoted to supporting the medical research of chronic intracranial hypertension. We also provide assistance, education, and encouragement for individuals with chronic IH, their families and medical professionals.
Our mission is to discover why intracranial hypertension happens, along with new, effective treatments. Our ultimate goal is to find a cure.
IHRF News and Events
Join our TOGETHER We Are Strong Facebook Campaign for Rare Disease Day 2012
CNN: Astronaut Vision Has Become Major Concern For Future Deep Space Missions
IHRF Part Of NASA Research Team On Microgravity-Induced IH
IHRF, Ad Hoc Group For Medical Research Urge Congress: Prioritize Funding for NIH, Medical Research in 2012
2011 IHRF Patient Conference: Pictures and Thanks
Patient Survey: IH Registry Seeks Your Help To Improve Registry Enrollment Process
Two IH Registry Studies Published in Obesity Review & Journal of Women's Health: Total Economic Costs of IIH in US Exceeded $444 Million in 2007
IH Registry Provides Research Resource Data to NIH-Funded Database Built By OHSU, Harvard, 7 other institutions
Is Vision Loss in IIH Associated With Weight Gain Before Diagnosis?
Surprising Findings From IH Registry Study Published in the Journal of Women's Health
Previous research on women with IIH 
has suggested that obesity or recent weight gain was associated with a greater risk of sustained vision loss or deterioration of the vision field. The following paper is the second research study published from an IH Registry project.